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Exercise Options
Merielpb
#1 Posted : Thursday, October 20, 2011 1:03:32 PM Quote
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Hello

Only diagnosed last month but MTX seems to be working very well. I appreciate this question may be a little insensitive, given how much some people seem to suffer but here goes....

Everyone/thing says exercise is good for your RA. Can I go running or will I actually be doing myself more harm than good?
I used to go for a gentle jog with my husband & we talked the whole time, so not exactly pushing it. Haven't been much this year due to symptoms before diagnosis.
sheila_G
#2 Posted : Thursday, October 20, 2011 7:34:35 PM Quote
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Hi Meriel

I was told that the only exercises I should do are swimming and walking. Knowing how things are with RA and consultants, nurses etc I am sure other people on the forum will have been told many different things. I'd say do what feels ok. If it hurts stop.

Sheila x
Dorothy-W
#3 Posted : Friday, October 21, 2011 9:39:36 AM Quote
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hi, i swim and walk, i think the same as sheila whatever helps the person,i did buy a good crosstrainer and find it comfortable to use ,i go at my own pace,i also have a dog so i get out with him, best of luck finding the right choice,dorothy
jeanb
#4 Posted : Friday, October 21, 2011 10:12:07 AM Quote
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I would say no to any exercise which puts stress and/or strain on the joints and I would definitely think running comes into this category. Water based exercises are good because the joints are supported, but in a sport like running your knees, ankles and hips will, at some point in each step become subject to enormous pressure. Have you asked your consultant or rhematology nurse what they recommend? They may say you are fine to continue to run, but I really would check this out in detail first of all. Love to you xxxx
Merielpb
#5 Posted : Friday, October 21, 2011 11:18:18 AM Quote
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Seeing my Rheumatologist on Tuesday, so will ask her then. As of yet haven't got a rheumatology nurse or a physio. I will probably wait to speak to a physiotherapist before I make any decision. Believe it or not, since I posted that question yesterday my left ankle has started to hurt like hell, so perhaps my body is trying to tell my mind something!!
jeanb
#6 Posted : Friday, October 21, 2011 12:02:35 PM Quote
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That's a great idea - RA physios are usually very knowledgeable and clued up. Oh - welcome to the forum by the way!! Sorry you have to have crappy RA to join, but you will get (and be able to give) lots of support and encouragement from others who know how you feel! I'm so pleased that you seem to be doing well on your present meds.

I'm Jean, 68, diagnosed about 9 or ten years. I have a very supportive husband, a great family and some very good friends (some of whom I met on here!). We tend to have a forum weekend get-together once a year (about 40 - 50 of us with partners/husbands and offspring!!) We usually manage to laugh for 24 hours!!! Basically, it does help to be a bit mad if you have RA!!!!

Take care

Love Jeanx
lotte
#7 Posted : Sunday, October 23, 2011 3:59:36 AM Quote
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if you want to jog the best way is to jog on a trampoline this way there is minimal impact on your knees x
BlackCat
#8 Posted : Monday, October 24, 2011 8:30:54 AM Quote
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Hi

I used to jog, but was told to stop by the Dr after diagnosis as its a high impact exercise and can put too much pressure on joints that are already a bit fed up. Like the others I tend to walk and swim, with a bit of the gym (cross trainer and exercise bike) thrown in. Arthitis Research UK have a section on exercise that may help: http://www.arthritisrese..._and_arthritis.aspx#non

But its always best to ask your dr first.


Sarah
dvear
#9 Posted : Monday, October 24, 2011 1:19:52 PM Quote
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I have remained very active despite having RA. When I was first diagnosed i was lucky enough to be referred to a brilliant occupational therapist; togther we invented splints that have enabled me to carry on horse riding.

I still compete to a reasonably high level; I was on a winning team at this year's National Riding Clubs Championships. I also still break and train my own horses.

The only warnings I was given were to pace myself (still not good at that but accept that I will pay the following day) and if it hurts stop!

I would suggest talking to a physio or occupational therapist and if running is what you enjoy they will do their utmost to help you continue.

I have had RA for nearly seven years now and I know I was lucky because it was caught very early and is well controlled with 20mg injections of mtx weekly.

Good luck Blackcat!

Dawn.
Mandy_M
#10 Posted : Tuesday, October 25, 2011 9:50:33 AM Quote
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Brilliant to hear, Dawn!
Dorothy-W
#11 Posted : Tuesday, October 25, 2011 11:07:24 AM Quote
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i also got the pace yourself advice and years later still cant get it right, im lucky to still be active thanks to o/t and team,i try not to over do it but i still push myself alot,i was put on mtx at begininng now inj 25mg and hydroxy plus pain killers did lose 2st in weight and watch my diet good luck,dorothy.


dawn,good for you.
jenni_b
#12 Posted : Tuesday, October 25, 2011 11:35:10 AM Quote
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Hi

I did aqua fit things when I was first dx
The thing is- you must stop when the pain comes

I find now doing just dance 2 on the wii is good as I can do it in the chair!

Jenni xx
how to be a velvet bulldoser
jenni_b
#13 Posted : Tuesday, October 25, 2011 11:37:22 AM Quote
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Ps we should ALL be doing the full rotation daily....My rheummy did that with me at the start. The Ot did about energy and joint conservation and the physics did lots of work in the hydro pool with me . Recently doing more core stability stuff...
how to be a velvet bulldoser
BlackCat
#14 Posted : Tuesday, October 25, 2011 12:05:33 PM Quote
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Dawn - that is fabulous!

I wish that there was better advice like this available as once you stop an activity, its hard as anything to start again.

And I love Just Dance on the Wii - have to remind myself not to go to mad - for the sake of the furniture/ornaments if not my joints.....

dvear
#15 Posted : Wednesday, October 26, 2011 12:23:46 PM Quote
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Thanks for the kind words. BigGrin

I must admit I never stopped riding, although scaled things right back in the beginning 'cos I couldn't cope with so much. I also realise I am very lucky to have the RA well controlled just with mtx and long may that continue. The worst I have to put up with is feeling sick for a couple of days after injecting and compared to what some of you guys put up with its pretty insignificant really.

Dawn. x
Merielpb
#16 Posted : Thursday, October 27, 2011 9:58:19 AM Quote
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I saw my rheumy on Tuesday - she said if I feel up to going running then I should go for it! I Will wait till I've seen a physiotherapist, as they will probably want to look at my running style & give me some advice about the best way to run to protect my joints.
LynW
#17 Posted : Thursday, October 27, 2011 10:31:21 AM Quote
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Again, it seems as though we are often given contradictory advice!

I was a county athlete and ran everyday. The diagnosis of RA put paid to that although the damage had already occurred! I now have severe foot deformities (10 joints have been removed) and problems with both knees which will require replacement.

Any exercise that is weighbearing is not recommended for anyone with RA. It puts undue pressure on the small and delicate joints of the feet, which are particularly vulnerable, and do become very easily damaged. Bear in mind you only get the one pair of feet ... they need looking after Smile

The best exercise is swimming which is non weightbearing and exercises a good range of muscles and joints. It's not easy hanging up the running shoes, I still miss it, but long term health and joint protection had to come first. I am staggered that your rheumatologist should consider running as an 'okay' sport ... she needs to take a look at my feet!!!!

Good luck with the physio and great idea to await the outcome Smile

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

Tinafromnotts
#18 Posted : Thursday, June 14, 2012 10:49:33 PM Quote
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This post has not been commented on for a long while - but I wonder if anyone has any new updates to this.......

I was a kickboxing instructor who did compete at national level. Whilst not kickboxing I could be found cycling, jogging, in the gym or swimming (thats having given up on the scuba diving, rock climbing and parachuting that I used to do in previous years. I was only diagnosed with RA in February this year, but when I talk to the Nurse Specialist or Rheumatology team all they say is that the medication will hopefully allow me to live a "normal" life once more as medication has improved so drastically over the last few years. Exercise is MY normal life - so is it realistic to think I may one day return to instructing/training?
Tina
Julia17
#19 Posted : Saturday, June 16, 2012 6:09:11 PM Quote
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Hi Tina

I have had RA for about three years now, and would say from reading posts and various articles over this period, some people become very well controlled and hardly know they have the disease and others who obviously have it more aggressively have to adapt to a new life style. I personally think it is all down to each individual, some have it relatively mild and others have a much more aggressive form. I m sure others on here will be able to give you their thoughts too.

Julia xx
LynW
#20 Posted : Sunday, June 17, 2012 7:02:01 PM Quote
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Hi Tina

I wouldn't say your return to Kickboxing is necessarily out of the question. A lot will depend on your level of active disease, your response to treatment and whether you have already incurred long term damage and if so to which joints. As Julia says we are all individual and respond so differently to Rheumatoid. Huge advances have been made in the last 10-15 years which have greatly improved disease control and provide a more optimistic outcome for the future.

Whilst you have inflammation/pain exercise isn't recommended as this may simply exacerbate the disease processes no matter how careful you are. What is important is that you maintain a level of gentle function that will keep your joints mobile. A physio assessment, if you haven't already had one, will help with this and point you in the right direction. It's hard to give up the exercise which is so much a part of your life, I know, been there done that and still find it immensely difficult even after 24 years! But, life changes, it's not easy but there are opportunities out there and a change of direction is sometimes not a bad thing.

I understand exactly how you feel right now and it isn't good. Stay strong and positive, learning about the disease and your own limitations will put you in a much better place. Things could be a whole lot worse ... believe me!!

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

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